Tag Archives: dementia

ALL KINDS OF CRAZY

Our neighbor Jimmy passed away about six months ago. He had dementia and for the last six years of his life, a woman named Doris came to his house to take care of him. She was somewhat scatterbrained. At night he had a succession of nurse’s aides come and stay with him overnight. They never lasted that long because unfortunately for them Jimmy really came alive at night. And by that, I mean his paranoia and delusions and mania would take over.

THE LOVE MACHINE

For a few weeks, I thought that Jimmy must have some kind of wild animal or bird living in his house because at night I heard an unearthly screech. It woke me from a sound sleep. I thought at first something or someone was being murdered. The first time I heard it I ran across the street.” What’s going on, what’s that horrible noise?” The night caretaker said, “it’s Jimmy. Sometimes patients with dementia scream like that.”

Occasionally Jimmy would escape from his house and wander around the neighborhood. One beautiful spring morning I was outside working in my garden. And I saw Jimmy sauntering down the other side of Walnut Avenue in his pajamas and fuzzy slippers. He was wearing a Fedora with a peacock feather sticking out of it. He had a pistol strapped to his waist. I crossed the street and walk over to talk to him and assist him in getting back to his own home. “Hey, Jimmy, what’s up? What are you all dressed up for anyway?”

Jimmy said, “I found this hammer on the tree limb over there, I’m taking it home.”

And sure, enough Jimmy had a hammer in his hand. “That’s great Jimmy, let’s walk back to your house you must be a little cold in your pajamas?”

“No, no, no.”

“Well Doris will be worrying about you, and she probably has your breakfast ready.”

“Oatmeal?”

“Well, maybe let’s go and see if that’s what’s Doris is making.”

POLAR BEAR/DOG?

“OK.”

I take Jimmy across the street and knock on his front door. “Doris, I found Jimmy walking down the street in his pajamas and he was carrying a hammer. I pointed at the gun on his waist with my chin, Doris nodded her head with a knowing look and a smile of resignation.  She said, “No bullets.”

“Jimmy, come in and eat your breakfast before it gets cold. It’s your favorite, bananas and cream oatmeal.”

Jimmy is a nice man and a good neighbor. I felt bad when he developed dementia. He suffered from dementia for over six years. And then he passed away quietly during a quiet winter’s night.

After he passed away his house stood empty up until today. I heard he left the house to relatives. I hope they would start taking care of the house. After Jimmy developed dementia, he stopped taking care of the house. He hadn’t painted the house in years. And the green shutters hang askew. The grass hasn’t been cut for a long, long time. It looks like a jungle back there. There are piles of trash all over the front yard. And two old cars that haven’t been driven in years rusting in the driveway. The whole place is an eyesore. At one point Jimmy decided to clean out his garage. Apparently, he kept everything he ever bought during the thirty-some years he lived in his green shuttered house stored in the garage.

So about seven years ago Jimmy got it in his mind that he was going to clean out that garage and have a yard sale. Unfortunately, about two days before he scheduled the yard sale, he took a fall down the steps in the back and broke his arm and his ankle on his left side. Jimmy was never the same after that. He never bounced back.

And that enormous pile of stuff from his garage has been lying on his driveway behind the junk cars during three years of Spring rain, Summer heat, and winter’s snows. Some of it has blown down the street onto the neighbor’s yards. Some ended up in the street. And anything of value was picked through by mysterious scavengers in the dead of night. And the rest remains a memorial to a man who accumulated more stuff than he ever needed and saved for a rainy day when he might find a use for it. That day never came, it sits there as a cautionary tale to all who see it. Don’t buy things that you don’t need now and won’t need in the future no matter what a great deal it seems to be.

As I gaze across the street at Jimmy’s empty house. I feel it’s a sad reminder of my neighbor. I hope against hope that one fine day a moving van will drive up in front of Jimmy’s house and a family will disembark and move in and bring joy and laughter again to Jimmy’s house. And once again the house will become a home.

And unbelievably as I was wishing for a family to move across the street into Jimmy’s white house with the faded green shutters, I see a battered old school bus circa 1970 make a right turn down Walnut Avenue and down to 25 Walnut Ave, none other than Jimmy’s house. The bus is painted in psychedelic colors with huge daisies and butterflies all over it. And it bore on the driver’s side the legend, THE LOVE MACHINE.

I was so astonished I said out loud, ’What in the hell is that monstrosity?”

The folding doors of the psychedelic bus creak open and outpour a menagerie of people so out of place in this decade I thought I must be having a stroke. I rub my eyes and check my pulse. They seem to be in working order. And then it occurs to me that maybe I’m still asleep in my bed and this is some kind of dream or nightmare. Or perhaps a flashback to my youth when I spent my first year out of highschool hitchhiking across America from New Jersey to California and to Florida and back to New Jersey.

But then I hear loud music, emanating from the bus. The whole experience has a dream-like quality to it. It’s surreal. After all the people have debarked from the bus a huge dog leaps out the door bypassing the steps on the bus and landing on the sidewalk. At least I think it’s a dog or perhaps it’s a polar bear. I wouldn’t be surprised at all. At least ten people descend the LOVE MACHINE’S steps and two-step it to the front steps to Jimmy’s front door. I wouldn’t be the least surprised to see a dozen clowns leap out of the LOVE MACHINE’S windows and float to the front door by the giant bouquet of multi-colored balloons, followed by a platoon of monkeys in tuxedoes.

My curiosity is overpowering my common sense. I want to march across the street and knock on the front door. I take a few steps slowly forward and then all but run across the street. If I’m lucky I’ll wake up with a start and realize that it’s all a dream or maybe a nightmare.

I rush up the steps and bang lightly on the door. And when no one comes to the door immediately I bang a bit harder, I put some muscle into it and bang as hard as I can. I lean my torso over to the right and look through the living bay window. There are about ten people in there standing in a circle, holding hands. At first, I think they might be praying. Or asking for a blessing on their new home. But then I notice that they all have something in their right hands and smoke is wafting in the air. I think well maybe they’re smoking pot. But then I notice that four of the people are children. I think, good grief I hope not. And then it comes to me they are burning sage. And I remember someone told me that sage is burned to cleanse a space of negative energy, to promote healing.

As I stand there looking in their window, I think that’s not so bad, maybe it’s a good idea after all those years when Jimmy lived there with his dementia and confusion. The place probably could use a good cleansing. As I watch them, I decided this wouldn’t be the best time to meet my new neighbors. And I slowly back down the steps and quickstep it back to my side of the street and into my yard. I hope that they didn’t see me peeping in their window. Tomorrow I‘ll bring them a nice welcome to the neighborhood present, like muffins or something.

In the next few days, I spent a lot of time in my backyard. My new neighbors are busy moving into Jimmy’s house. At one point they all went out in their Love Machine bus and I snuck over to their front porch and left a dozen blueberry muffins on their front step with a card saying I was their neighbor across the street with the fence around their yard and my name was Mary Mc Clennon.

For the first few days, they cleared the house of all Jimmy’s worldly possessions. And oh boy, was he a collector. His hobby for years was going to yard sales and estate sales and buying all kinds of stuff. Things I couldn’t even put a name to. Well, if I did put a name to it, I would call it a bunch of useless crap.

After the week-long clean-out marathon they began bringing in their belongings. I can only say that it was an eye-opening undertaking. I can’t imagine what their intentions they have for some of the things that went through the front door. And occasionally was hauled up by ropes from the driveway to the balcony that was on the second floor of the house. At one point an old player piano is pulled through those double doors on the second floor. It looks like a player piano, that uses foot pedals and paper rolls.

I remember seeing a player piano in the Roxy Theater when I was a very young child.. A woman would come out on the stage before the movie. This was a Saturday matinee. And she would start by pedaling the piano, and a white paper with holes in it would automatically go through and it would play the music. I can’t imagine what they were going to do with all the weird things that went into Jimmy’s house. My curiosity is getting the best of me. I so wanted to go over there and ask them what they were planning on doing.

On the fourth day of their moving in I noticed a few new people were arriving at Jimmy’s front door with suitcases and some boxes. I guess the boxes held the rest of their belongings. How many people were going to be living in this three-bedroom house for crying out loud?

The next day I got my answer when two trailers show up and park in the backyard. The kind of trailers that people live in. According to my observations, it appears as if at the very least fifteen people are living in or outside Jimmy’s house currently. I can’t stand it any longer. I make up my mind that I’m going to march over there and find out what in world they’re up to in there. If they don’t give me a reasonable answer then I’m going to go to the township and make sure that they put a stop to it.

Early the next morning I walk into my kitchen to make something to eat and have a cup of coffee. I see a movement in my peripheral vision outside my kitchen window. I look across the street and low and behold there is a big crowd of people gathered outside my new neighbor’s front yard. It is at 7:45 am. And when I say big, I estimate there are about a hundred people out there.

And then I see what I can only describe as a line of Circus Performers coming out the front door of my neighbor. And they are following what looks like a polar bear at the head of the line. I kid you not. I rub my eyes because I think I must be having a hallucination or maybe I’m still asleep and having a weird dream. I pinch myself. Nope, they’re still there.

“What in blue blazes is going on?” I say to no one in particular. I don’t know if I should run across the street and read them the riot act. Or if I should go back to bed because it may be that I’m having a stroke or a hallucination of some sort. And then all of a sudden I hear a loud noise, boom, boom, boom.

And I see coming up behind the polar bear an eight-foot clown with a big drum that is suspended in front of his impressive stomach. And he’s hitting the drum with giant drum sticks with wooden balls on the end. And I hear boom, boom, boom once again. And then I hear tambourines being played by a little girl smoking a cigar. And the smoke from the cigar is wafting up into the air above her and spelling out Loonie Brothers Family Circus. The crowd begins to chant, “Loonie Brothers, Loonie Brothers, Loonie Brothers Circus.” And they all begin clapping and chanting at the same time.

“Good grief, “what’s next? I say out loud, “an elephant?”

I close my eyes for a brief moment, fearful that it might indeed be an elephant. And when I open my eyes again. I see a man dressed in hot pink tights and tiny lime green shorts on the roof of the house. He is walking across the ridge of the roof with his arms out and walking across each of his outstretched arms is a Blue and Gold Macaw who is screaming at the top of their lungs LOONIE BROTHERS FAMILY CIRCUS.’

They are so loud and high-pitched I think they might have permanently damaged my eardrums. The two macaws stretch out their wings. I have to admit that they are absolutely gorgeous birds. But please, please someone tell me that they are not going to be living across the street from me for the rest of my life.

While I’m looking up at the Macaws, I fail to see a very tall, very thin bald man come up behind the smoking girl and he is standing on the front porch wearing what I can only describe as a gold diaper. His feet are enormous and hairy. This is weird because he doesn’t appear to have hair on any other part of his body. In addition to having gigantic feet, it appears as if his toenails have never been cut and are so long that they have curled into a spiral shape over his feet. I can not imagine that there is any possibility that he is able to wear shoes. I stand immobilized by what is before my eyes and I wonder if this man’s only talent is being weird as hell. But no, at that moment he begins spewing fire out of his mouth. And the fire is shooting out five feet from his face.

I begin to question my own sanity again. Could this be really happening? And that’s when I see two men on eight-foot stilts coming out the gate from the back yard where the trailers are parked. And there is a wire between them and walking across the tightrope as they are walking towards us is a chimpanzee in a frilly pink tutu. Every time they stop, she takes a bow and swings 360 degrees around the tightrope and the crowd goes crazy and clap and yell. “You go girl.”

I can not imagine how they will top the monkey in the tutu, she was fantastic, so graceful. And that is when in the precise moment that I hear an oddly familiar sound. And then I see the largest pig I’ve seen in my entire life. He must have weighed over 500 pounds. He was snorting away. And on his back sat a petite young woman who had a huge white snake draped around her neck and torso.

And that is the moment that the crowd went crazy. They were clapping and laughing and the little kids were jumping up and down. The woman slowly got to her feet on the pig’s back as he lumbered along at his own slow pace. As she stood up the snake slithered his or her way down the woman’s body until his head was at her ankles. And then slowly slitherers up her body and stops at the top of her head.

And then I hear the player piano which had been pushed out onto the balcony start to play. And it was the song you always associate with circuses called: ENTRY OF THE GLADIATORS… And everyone starts to clap, and I clapped along with them because who wants the circus to end. And we all started clapping and laughing.

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KARMA BITES

I came to Florida on business but decided at the last minute to visit my mother-in-law; she’s living in a full-care nursing home. That really means you are completely out of it, and need someone to feed you, change your diapers, and wash you. It’s the last stop before you move on to whatever comes when you pass from this life.

I haven’t seen her for five years. We sent her to Florida to my brother Chuck when we weren’t longer able to take care of her. The nursing homes are less expensive in Florida. I feel tremendous guilt about sending her there. But it all got to be just too much. So off she went on her permanent vacation to the Sunlit Village Home.

Deserted Island by Hoobychubes-Pixabay

I’m bringing my mother- in- law a small dictionary, and a mask of a greyhound. She used to love crossword puzzles and bet on the greyhounds’ way back when. Needless to say, I realize soon enough she wouldn’t need any of these thoughtful gifts.

I admit I didn’t expect to find her playing Canasta, but I wasn’t prepared to see her tied into a giant high chair, with a bib around her neck either. I try having a conversation with her, but she doesn’t seem aware that I’m here. She talks, or perhaps yells, would be a better description. She screams over and over.” I want chocolate.” After about one hour of this, I pat her on her now white head, and say, “I love you, Mom. I hope you see Peter soon very soon.” Peter is her deceased husband.

That’s when I boogie out the door, never to return again. I decide to do something to lighten my mood. I see a sign that read, rent a boat, twenty dollars for half an hour. I decide to go for it. In hindsight, I should have checked the weather report, but that’s me act now think later.

Off I go rowing in the deep blue sea, I notice after about fifteen minutes, the water starts getting choppy, and the wind picks up. No prob.  I can handle this. It turns out I can’t. The little boat starts a rocking, and I start upchucking my corned beef on rye with extra sauerkraut. Next thing you know, I’m way, way out, can’t see any land. I think I pass out for a while, or maybe my brain decides to take a little vacation of its own.

When I wake up, the boat is banging up against something. It turns out it’s an island. If you can call a clod of dirt, whose only inhabitant is a lone palm tree, an island. I pull the boat and myself onto the shore. And take a little look around. Takes about one minute to realize that I’m royally screwed. I think I guess this is payback for my bad karma with Mother-in-law.

I walk over to the tree, and at the very top, there’s a coconut. Using my amazing athletic ability, about one hour later, I find myself within one foot of said coconut. I start swinging one arm wildly and banging the trunk of the tree, low and behold I knock that sucker down.

That’s when I remember I’m terrified of heights. So, I stayed glued to that tree for another two hours before I gather the courage to climb down. Well, I climb halfway down, and slide the rest of the way, scraping most of the skin off my arms, and bare legs.

Once I arrive on the ground again, I take a look at my burning legs and arms, and start crying quietly, and then in earnest, reaching that level of crying known as the ugly cry. Glad no one is there to witness it, or even worse video it, and post it on YouTube.

I crack open the coconut with a nearby rock, and just like that, I have coconut milk, which I pour over raw, and burning skin. I go over to the mighty yacht and get the dictionary and tear out pages and stick them to my now oozing legs.

Just at this moment, I see a tourist boat floating by my little square foot of paradise. People are waving and taking pictures of me with their freaking cell phones. It’s at this moment that I put on the dog mask because by now, I not only feel like a dog but smell like one too.

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Beddy-Bye

At four-thirty sharp every morning, my eyes fly open, I‘m wide awake. This morning I look over at the digital clock that is large and glowing, and it is blinking 12:00. Oh, oh, it seems as if the power went out again. We must have had another electrical thunderstorm. Wonder, what time it is? I make a bet with myself that it is four-thirty in the morning.

I blindly make my way over to the bathroom and flip the light quickly on and off, long enough to see the alarm clock. It has a backup battery. I win or lose, depending on whether I’m feeling optimistic or pessimistic at any given moment. It is indeed 4:30 am. My inner clock has wakened me up at 4:30 am.

This had happened to me every night since August 23, 1986, when my mother passed away from a complete coronary and respiratory arrest. On that particular night, I had wakened up from a sound sleep at 4:30 am and knew my mother passed.

At five am the aide, Doris, who was staying with my mother during the week, called to let me know that my mother had died. The ambulance arrived at the house to take her to the hospital, but of course, I was too late.

Doris, the aide, thought my mother’s refusal to have the air conditioner on or any of the windows open had precipitated her death. It was the hottest August 23rd in the recorded weather history of NJ up to this time. I had a new air conditioner put in my mother’s room, early in the spring. She had mid-stage dementia. And she was sometimes argumentative and combative.

Her disease had caused a radical change in her personality. Formerly a shy and quiet woman that spent her time saying the rosary, reading from her prayer book, and for excitement, she read the Reader’s Digest.

Oh, I almost forgot to mention she was completely blind for the past ten years from glaucoma. She became a paranoid and terrified woman who called me ten times a day to tell me someone was breaking into the house to steal her money, or that someone was hiding behind the living room chair, and smoking pot.

Before I realized what was going on with her, I used to sneak over to her house and peak in the living window to see if someone was hiding behind the rocking chair in the living room. Of course, there never was. Sometimes she called the police. And then they would call me. And I would assure them that she was somewhat senile, and I would be over shortly to check on her. 

My mother suffered these delusions for three years before I was able to get her to agree to go to a psychiatrist who specialized in sedating senile patients into submission, or as in her case, sleeping away the rest of her life. Subdued.

But that day, she had refused to take the sedative and was acting delusional and stubborn. There wasn’t much left of her. But what was there was stubborn when she wanted to be.

I waited until seven in the morning to call the rest of my family, and they were all upset that I hadn’t called them earlier, as if it would have made any difference. She was buried four days later at Calvary Cemetery, next to my dad, who had passed away from lung cancer eight months earlier, after a short battle of eight months, the longest months of my life.

The day is quite long when you wake up at 4:30 every morning.  Sometimes the days seem to run one into the other. This day would be no different. I was exhausted when I fell into bed, into a deep sleep, at ten pm. A little tomato juice and Temazepam paved the way for a few hours of uninterrupted sleep.

It was Sunday night, I had a full week ahead of me, but thanks to Mama’s little helper, I fell asleep ten minutes after my head hit the pillow, and didn’t wake up until eight-thirty the following morning. I woke up slowly. The room seemed different somehow, oh I realized it was daylight and not the usual pitch dark I wake up to. I had slept the entire night. I thought this is going to be a good week.

POCKETS By Susan A. Culver

I stand outside the red front door of my parent’s house for five minutes before I’m able to gather the courage to go inside. As I pull open the door a rush of memories of myself as a child, then a teenager in a Catholic school uniform and then as a young mother with my own children travel swiftly through my mind.

I walk through the front hallway, I’m once again reminded that the once bright yellow walls and lime green carpet are now dull and dirty from years of my father’s smoking. The air is stale and musty.

The house feels empty of life and filled with sorrow. I take a deep breath and go into the kitchen. I haven’t been in the house since my mother passed away three months earlier. She  suffered from dementia for the last five years of her life. Each day of her final journey had been marked by a new loss until finally there was nothing left but a mere whisper of the loving woman, she had been during her seventy-six years of life.

Only one week remains for me to clear out the house out before the new owners will arrive. I had put the difficult task of cleaning out my mother’s room off for as long as possible. I felt paralyzed with grief since her death.

I walk through the kitchen into the hall and slowly open her bedroom door. The room feels cold and empty. I look down at her bed, where she spent her final hours. There folded at the foot of the bed is the cream-colored afghan that I had crocheted for her while I was pregnant with my first child.

As I open her closet door a familiar fragrance fills the room. It’s my mother’s perfume Jean Nate’. The aroma surrounds me like my mother’s embrace.

I begin taking the well-worn house-dresses out of her closet, laying them across the bed. I don’t think anyone else will want the,m, but I can’t imagine throwing them away. Then I see a plastic clothing bag hanging in the back of the closet. I unzip it and find my mother’s favorite blue coat. The coat I made for her sixtieth birthday.

I  taught myself how to sew while I was in high school. At first, I made simple skirts and shifts and as my skills and confidence grew I made coats. The first coat was this blue one for my mother. She had encouraged me from the beginning of my journey with sewing as she had with everything I had attempted in my life. She would say softly, “You can do it, Susan, keep going you’re doing a wonderful job.”

When I finished the coat, I feet proud of it, I made of soft pale blue cashmere wool. I searched flea markets and vintage clothing shops until I had found the perfect buttons. They were mother-of-pearl shaped like roses, my mother’s favorite flower. I hand-bound the buttonholes and sewed the lining in place with tiny stitches.

She wore that coat every Sunday to Mass on the cold winter mornings for almost fifteen years. I offered to buy or make her a new coat, but she never wanted another one. Saying she didn’t want to wear anything else.

I held the coat in my arms close to my heart. It brought back so many memories of my mother.  The first time she wore it, I heard her telling all her lady friends, “My daughter made this for me. Look at this fine stitching and beautiful pearl buttons.”

I put the coat down on the bed and look through each pocket, making sure nothing is left inside. I find her rosary beads. The ones my father had made for her for their fiftieth wedding anniversary. The beads were handmade from dried roses and came all the way from County Cork in Ireland. Where my mother’s parents were born.

I found a slip of paper handwritten in fading ink with the names of all her children and their birthdays. At the bottom of the paper were the names Stephen and Gerard. My twin brother’s who only lived a few days. The children my parents never spoke about. But I knew my mother prayed for them every day of her life.

In the inside pocket, I found my mother’s prayer book. Its pages were worn thin from decades of use. As I pick up the prayer book, Holy Cards come tumbling out. I knelt down to pick them up.

Among the Holy Cards, I see a folded note. I carefully open it. The handwriting look familiar, I realize it’s my own. A note I wrote and placed inside the pocket of the coat when I gave it to my mother on her sixtieth birthday. I can see it has been read many times. It read, ” I made this coat for you my wonderful mother. Each stitch represents the love I received from you each day of my life. I hope it makes you feel as loved and protected as you always made me feel.

Love your daughter, Susan.”